Experience of persons with epilepsy in labour market

¹ Mykolas Romeris University, Vilnius, Lithuania
² Lithuanian University of Health Sciences, Kaunas, Lithuania

^* Corresponding author: jolantapiv@mruni.eu

Abstract

The goal of the article is to reveal how the right to work is implemented regarding persons with epilepsy by investigating their subjective experience. The article is based on qualitative research methodology. By using content analysis three categories with subcategories were formulated: motivation (high motivation for employment, demotivating factors), experience in labour market (negative emotions during job interview, hiding the illness, consequences of hiding the illness, stress for possible seizure at work), relations with employers (expectations toward employers, stigmatized attitude of employers, stereotypical thinking). Research data shows that persons with epilepsy have high motivation in searching job and attempting to stay in labour market, because they want financial stability, safety and inclusion in social life. The main demotivating factors are painful experience during job interviews; not adjusted working conditions and environment. Persons with epilepsy experience negative emotions during job interviews, they hide their illness from employers as long as it is possible, but even after illness is discovered they constantly feel stress for possible seizure. Research participants have clear and specific expectations, they feel stigmatized, stereotypical attitudes to them, and want individualized approach to the situation, and adjustment of working conditions to their abilities.