| Issue |
SHS Web Conf.
Volume 134, 2022
14th Session of Euro-Asian Law Congress “The value of law” 2021
|
|
|---|---|---|
| Article Number | 00019 | |
| Number of page(s) | 7 | |
| DOI | https://doi.org/10.1051/shsconf/202213400019 | |
| Published online | 09 February 2022 | |
Instruments for the protection of human rights violated during the study of human genome
Higher School of Economics, Institute of Problems of Legal Regulation, 101000, Myasnitskaya St, 20, Russia
* Corresponding author: agutnikova@hse.ru
The paper contains a comparative analysis of legal instruments used in the Russian legislation and in the legislation of other countries (Germany, Great Britain, USA, Japan) to protect (prevent violations, restore) human rights violated during the study of human genome. It was concluded that the existence of a comprehensive system of legal means for the protection and restoration of human rights violated during the study of human genome, is an incentive for the development of genomic research. In this regard, in Russia it is necessary to amend civil acts, Information, Criminal and Administrative Law in order to establish the peculiarities of the compensation for harm to human rights violations when studying human genome, special (different from the general) procedure for obtaining voluntary informed consent for genomic research, as well as special offences and administrative offenses committed during the study of the human genome.
© The Authors, published by EDP Sciences, 2022
This is an Open Access article distributed under the terms of the Creative Commons Attribution License 4.0, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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