Open Access
Issue
SHS Web Conf.
Volume 134, 2022
14th Session of Euro-Asian Law Congress “The value of law” 2021
Article Number 00018
Number of page(s) 4
DOI https://doi.org/10.1051/shsconf/202213400018
Published online 09 February 2022
  1. I. Tuzankina, S. Deryabina, M. Bolkov, Primary immune deficiency at an early age (Izhevsk, Print LLC, 2018) [Google Scholar]
  2. M. Gallo, Agostiniani, R. Pintus, V. Fanos, The child with medical complexity, Italian Journal of Pediatrics, 47, 1 (2021) [CrossRef] [Google Scholar]
  3. D. Penela-Sánchez, S. Ricart, N. Vidiella, J.J. García-García, A study of paediatric patients with complex chronic conditions admitted to a paediatric department over a 12-month period, Anales de Pediatria, Sep 21 (2020) [Google Scholar]
  4. N. Carrilero, A. Dalmau-Bueno, A. García-Altés, Comorbidity patterns and socioeconomic inequalities in children under 15 with medical complexity: A population-based study, BMC Pediatrics, 20(1), 30 (2020) [CrossRef] [Google Scholar]
  5. W. S. Looman, Y.-S. Park, T. T. Gallagher, E. V. Weinfurter, Outcomes research on children with medical complexity: A scoping review of gaps and opportunities, Child: Care, Health and Development, 46(1), 121–131 (2020) [CrossRef] [Google Scholar]
  6. E. Zaitseva, M. Bolkov, L. Voronina, To the issue of the socialization of the patients with PID, Russian Immunological Journal, 13(22), 1028–1030 (2019) [Google Scholar]
  7. On the basics of public health protection in the Russian Federation: Federal Law No. 323-FZ dd. 21.11.2011. Retrieved from: http://www.consultant.ru [Accessed: 30.03.2021]. [Google Scholar]
  8. N. Mahlaoui, B. Gathmann, G. Kindle, et al., The European Society for Immune deficiencies (ESID) Registry: recent advancements in the epidemiology of Primary Immune deficiencies and how does that translate in clinical care, Rare diseases and orphan drugs, 1(4), 25–27 (2014) [Google Scholar]
  9. S. Deryabina, I. Tuzankina, E. Vlasova, M. Bolkov, V. Shershnyov, Neonatal screening for Severe Combined Immune Deficiency in Russia: the beautiful far away or tomorrow's reality? Issues on modern paediatrics, 16(1), 59–66 (2017) [Google Scholar]
  10. S. Grishin, Crimes committed by medical workers as a result of improper performance of their professional duties (based on the materials of the judicial practice of the European part of Russia 2015-2017), pp. 1–14 (2018) [Google Scholar]
  11. GOST R 50646-2012. The National Standard of the Russian Federation "Public services. Terms and definitions". Date of introduction: 2014-01-01. [Google Scholar]
  12. The use of individual systems based on DNA polymorphism of amplified fragments (PDAF) in forensic medical examination of identification of a person and determination of kinship: Methodical instructions, No. 98/253 (approved by the Ministry of Health of Russia on 01.19.1999). [Google Scholar]
  13. On Genetic Testing (GenDG): German law. July 31 (2009). Retrieved from: https://www.gesetze-im-internet.de/gendg/ [Accessed: 21.03.2021]. [Google Scholar]
  14. On the study of the human genome: the Law of Latvia. July 3 (2002). Retrieved from: https://www.dvi.gov.lv/en/legal-acts/human-genome-research-law/ [Accessed: 25.03.2021]. [Google Scholar]
  15. A. Sahipgareeva, Law regulations of genome research in the United States of America, The Bulletin of the University named after Kutafin, 4, 146–151 (2019) [Google Scholar]
  16. E. Zaharova, The Programmes of mass screening: technical, social and ethical issues, Medical genetics, 3, 21–23 (2006) [Google Scholar]
  17. A. Baranov, V. Albitsky, A. Ivanova et al., The incidents trends and the state of health of the children population of the Russian Federation, The Russian pediatric journal, 6, 4–9 (2012) [Google Scholar]
  18. On the order of medical care provision for the children and teenagers with allergic reactions and diseases associated with immune deficiency: the order of the Ministry of Health Care of the Sverdlovsk region dd. 04.07.2012 No.750-p. Retrieved from: http://minzdrav.midural.ru [Accessed: 30.03.2021]. [Google Scholar]
  19. S. Daidone, A. Street, How much should be paid for specialized treatment? Social science & medicine, 84, 110–118 (2013) [CrossRef] [Google Scholar]
  20. On approval of the standard of primary healthcare for adults with a disease caused by the human immune deficiency virus (HIV) (examination for diagnosis and preparation for treatment): The Order of The Ministry of Health of the Russian Federation No. 796n of 20.11.2018. Retrieved from: http://minzdrav.midural.ru [Accessed: 30.03.2021]. [Google Scholar]

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